Harshit's Story
Harshit Talwar was born on October 25, 2005, in New Delhi, India, to his parents Sakshi and Navdeep Talwar. At a time when few people in India had heard of Epidermolysis Bullosa (EB), the doctors knew little about his condition — but by a miracle, the one who cared for him after birth was the only person in the city equipped to help him start life well. What first felt like a hopeless diagnosis became something his family learned to manage, supported by loving relatives and friends.
When Harshit was three and a half, his father's work took the family to Singapore, benefiting both his education and his care. The next six and a half years brought joys alongside challenges, including costly specialized bandages and difficulty swallowing. A later move to Colorado Springs — drawn by EB research and better schooling — meant starting over in a new culture. The early months of school were isolating, until a classmate named Connor Bishop welcomed him with kindness and became a lasting friend.
In seventh grade, on a trip to Aspen, Harshit met Rhythm Kasat — four years younger, but a kindred spirit who felt like the little brother he never had. The two bonded over music, an anchor for Harshit through difficult times. In December 2024, while Harshit was in India, Rhythm called with an idea: start a nonprofit together. From halfway across the world, the two friends founded The Embrace EB Organization — a way to give back to the community that had given them so much.
