The Embrace EB Organization
1 in 50,000
children born with EB
501(c)(3)
tax-exempt certified
>$5,000
cost of living per patient per month
Our Mission

Empowering Children with EB

Mission Statement: We provide dependable and durable resources for the EB community through educational and nutritional support.

Epidermolysis Bullosa (EB) is a rare genetic condition that causes fragile skin, leading to painful blistering and wounds from minor friction. Kids with EB face extreme pain, and a simple scratch can lead to weeks of wounds and agony. There is currently no cure for EB, and treatment is very expensive, ranging from $50,000 to $500,000.

The Embrace EB Organization is a tax-exempt, 501(c)(3) certified organization dedicated to supporting children with EB by providing access to essential g-tube feeding supplies — ensuring no child faces these challenges alone.

Meet the Co-Founders
Child with EB enjoying adaptive skiing with the support of volunteers
What We Offer

Reliable Resources for Every Child

From nutritional supplies to classroom advocacy, we cover the full spectrum of support an EB child needs.

🍎

Nutritional Support

Essential g-tube feeding supplies carefully selected to ensure reliable nourishment for children ages 0–18 with EB.

Learn More
📋

504 Plan Template

Custom-crafted accommodation templates that empower families to advocate confidently for their child's educational needs.

Learn More
♿

Electric Wheelchairs

We now donate electric wheelchairs to children with EB, giving them the independence and mobility they deserve.

Learn More
❤️

Make a Donation

Every dollar you contribute helps secure vital supplies and educational resources for young warriors battling EB.

Donate Now
Get in Touch

We're Here to Support You.

Reach Out

+1 719-351-3511
contactusebony@gmail.com

Location

Colorado Springs, CO

Office Hours

  • Monday9:00 am – 5:00 pm
  • Tuesday9:00 am – 5:00 pm
  • Wednesday9:00 am – 5:00 pm
  • Thursday9:00 am – 5:00 pm
  • Friday9:00 am – 5:00 pm
  • Saturday9:00 am – 1:00 pm
  • Sunday9:00 am – 12:00 pm

Common Questions

Frequently Asked Questions

What is the Embrace EB Organization?
The Embrace EB Organization is a 501(c)(3) tax-exempt nonprofit dedicated to providing dependable nutrition and education resources to children living with Epidermolysis Bullosa (EB). We supply g-tube feeding equipment and educational 504 plan templates at no cost to qualifying families.
What is Epidermolysis Bullosa (EB)?
Epidermolysis Bullosa is a rare genetic condition that causes extremely fragile skin, leading to painful blisters and wounds from even minor friction or trauma. There is currently no cure, and treatment can cost between $50,000 and $500,000 per year.
How many children are affected by EB?
It is estimated that 1 in 50,000 children are born with EB, making it one of the rarer genetic conditions worldwide. Despite its rarity, the impact on affected children and their families is profound.
How can I support the EB community?
There are several ways to help! You can make a financial donation through our secure donation page, become an Embrace EB Ambassador and fundraise within your community, or simply spread awareness about EB to help us reach more families in need.
Who qualifies for nutritional support?
Our nutritional support program is available to children ages 0–18 living with Epidermolysis Bullosa. We work directly with families to ensure they receive the g-tube feeding supplies they need. Please contact us to learn more about eligibility.
What is a 504 Plan?
A 504 Plan is a legal document under Section 504 of the Rehabilitation Act that ensures children with disabilities receive the accommodations they need to succeed in school. For EB children, this can include special seating, modified physical activities, and access to medical care during school hours.
Make a Difference

Support Our Mission Today!

Your generosity directly funds vital supplies and resources for children living with EB.

Donate Now