Support for EB families

Empowering children with EB

Mission Statement: We provide dependable and durable resources for the EB community through educational and nutritional support.

Epidermolysis Bullosa (EB) is a rare genetic condition that causes fragile skin, leading to painful blistering and wounds from minor friction. Kids with EB face extreme pain, and a simple scratch can lead to weeks of wounds and agony. There is currently no cure for EB, and treatment is very expensive, ranging from $50,000 to $500,000. It's estimated that 1 in 50,000 kids are born with this condition.

The Embrace EB Organization is a tax-exempt, 501(c)(3) certified organization dedicated to supporting children with EB by providing access to essential g-tube feeding supplies. These supplies are crucial for the health and well-being of an EB kid and are oftentimes a struggle to receive in sustainable amounts. Inspired by personal experiences, we strive to give back to the community that supported us, ensuring that no child faces these challenges alone.

About the Co-Founders